
I finished a book last week, the first book I've read since the summer as my brain was unable to focus long enough nor did I make the time or have the energy these past few months. A daunting title: My Age of Anxiety. But anyone who lives with clinical anxiety knows all too well that the word daunting does not even capture its significance. In honour of #BellLetsTalk Day I've decided to write about the connections I made while reading this brave man's tale of a life that is filled with levels of anxiety that I cannot even imagine.
In the past when I wrote about my own battle with anxiety I was surprised at how many of my friends, colleagues, and acquaintances wrote to tell me about their own anxiety and how comforting it was to know that they weren't alone. A few were just coming to grips with a new diagnosis, some were self-diagnosing, others were hoping to find their own voice so they would finally be able to share their secret. Writing is therapeutic for me but if only one person out there finds reading this piece comforting, then I have played my part in #BellLetsTalk.
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I have a Generalized Anxiety Disorder which means I worry about pretty much everything. Even when not experiencing a panic attack or an acute episode of anxiety (which could last a couple of hours to a few weeks long), I am constantly worried. I worry about small things like Brennan getting sick or the strange sound my car is making and I worry about large things like the state of society, education, and poverty. I worry about the people in my community who cannot afford to eat. I worry about the homeless who have nowhere to sleep. I worry about my students who have difficult home lives. I also have a sub-type of agoraphobia: I am not afraid to leave my house but I have a phobia of being trapped far from home. I'm not sure what this phobia is called, but I am terrified of losing my luggage when flying. If I could fly with my luggage in cargo…I would. And so I don't travel much. My separation anxiety was so severe as a child that in Grade 4 I missed over 30 days of school in one term. I had chronic stomachaches that likely manifested from constantly being worried about being abandoned. I wonder how rich I would be if I was paid a dollar for every time someone asked me what exactly I was afraid of? Fear is the belief that someone or something is dangerous; anxiety is a feeling of worry, nervousness, and unease, typically about an event or something with an uncertain outcome.
Fear sharpens the sense. Anxiety paralyzes them.
- Kurt Goldstein, The Organism: A Holistic Approach to Biology (1939)
I was also diagnosed with depression last year. There are many similarities between anxiety and depression and they are often co-morbid so I guess it was only a matter of time but "…being severely anxious is depressing." My symptoms include: headaches, sensitivity to changes in weather, irritability, indigestion, hot flashes, insomnia, tenderness of the teeth and gums, sweating, back and neck pain, always being tired, difficulty concentrating and remembering things, and of course, excessive worry and panic attacks.
Many have and will continue equate having anxiety to having diabetes - "…usually manageable, sometimes fatal, and always a pain to deal with." There is an organ (the brain) that does not produce or absorb a chemical (seratonin) properly so the body needs medication to create homeostasis. When my body is going through a panic attack I have heart palpitations and a tightness in my chest. I sweat, shake, and pace or rock back and forth. I feel nauseous and have gastric distress. My body feels like it's on fire, I become dizzy, and I feel like the world is going to end. The desire to remove myself from the situation or stress is so strong that there is very little I won't consider doing to make the anxiety go away. The most infuriating part is that I know what is happening is chemical, physiological, and completely irrational. Despite my understanding, knowledge, intelligence and strategies galore, I cannot make it stop.
Living with mental illness isn't easy to say the least and I have explored many different options over the years: cognitive-behavioural therapy, group therapy, EMDR (eye movement desensitization and reprocessing), meditation, yoga, acupuncture, self-help books, psychology books, university level courses on anxiety and stress, herbal remedies, homeopathic remedies, specific diets, exercise, and 6 different types of medication. I concur with the author when he wrote: "But none of these treatments fundamentally reduced the underlying anxiety that seems woven into my soul and hardwired into my body and that at times makes my life a misery."
Taking medication for my anxiety has always been a love-hate relationship. When I was younger I didn't have any qualms about it because I just needed to function like a normal teenager and I didn't care what it took since being a teenager was hard enough. I made the diabetes argument a lot when family members would try to talk me out of it.
As I got older and learned more about side effects, possible long-term consequences, and the range of alternative treatments that were available (not EVER, even to this day, has a medical doctor mentioned any alternative health care as an option to me), I started to question the need to be on medication. The funny thing is that when medication is working, one often doesn't think they need it anymore. There are many peaks and valleys on this road. Over the years I tried several different medications and dosage levels, but Paxil was my go-to as it was the most effective. This past month, after the better part of 15 years of being on Paxil, I finally convinced my doctor to change my medication as I did not feel it was working anymore. My dosage was at the highest my body could tolerate and having weaned off of Paxil before, I asked my doctor if I should begin tapering before starting the new medication. My doctor did not think this was necessary because they were both from the same family of drugs (SSRIs Selective Serotonin Re-uptake Inhibitors). I think she was very wrong because the next two and a half weeks were hell. I learned from research that coming off of Paxil is similar to detoxing from heroin. I had daily: headaches, exhaustion, nausea, body aches that required me to have the hottest baths I could stand and wear heating pads and smelly muscle creams which only provided a small amount of relief, dry mouth, jaw clenching, increased teeth grinding at night which made my teeth extra sensitive, decrease in appetite, excessive irritability, pounding heart, increased sweating/always feeling hot yet having cold hands and feet, and nauseating vertigo. These were the withdrawal symptoms - the side-effects of taking SSRIs were also difficult to live with. My doctor has always made the argument that one has to decide whether or not the benefits of taking a drug outweigh their side-effects. I had to ask myself which affected my quality of life more: debilitating anxiety that prevented me from being a functional adult or the side-effects of taking a pill. Most of my life, I've chosen the pill. There are arguments that taking medication actually causes anxiety and depression and that many medical disorders were created by the pharmaceutical industry, however, anyone with anxiety will tell you that it is very real.
I am happy to report that my new medication is working at a much lower dose and with slightly less frustrating side-effects. I have changed my diet, gone back to the gym 5 days a week, am taking more time for myself, am seeing my naturopath and homeopathic doctors and am supplementing with vitamins and other remedies. There is a strong brain-gut link in our bodies meaning that what we eat and what our gut bacteria levels are have a huge effect on what happens in our minds. It's quite a fascinating body of research and it makes so much sense. When I eat clean, organic, gluten-free, dairy-free vegan foods and freshly made juices in combination with proper exercise (cardio, weights, yoga), I feel incredible. My mood improves, my memory functions properly, I sleep better and I have endless amounts of energy. Unfortunately I haven't yet figured out how to continue these practices while working and being a mom. My new project is to find this balance.
Until reading this book, I hadn't come across anything positive about having an anxiety disorder. I talk a lot with parents about the positive attributes their children with ADHD or Autism have, but never had I considered that my disorder may have positive attributes as well. Anxiety causes me to be a perfectionist (which itself isn't healthy) but it makes me a very good employee. My compulsiveness leads to few error and I am obsessively over-prepared. I'm reflective, goal-oriented, organized and very good at planning. I am conscientious and extremely dedicated to my profession. I am attuned and sensitive to the feelings of others and I have high levels of empathy, even toward complete strangers. These skills make me a fairly effective leader. New research now links anxiety to intelligence. I'll take that.
My goal has and always will be to be able to live with my anxiety (and now depression) without the use of medication. I recently voiced my concerns to my therapist about feeling that I won't have the coping strategies to deal with life without medication because I have had the pink pills to reduce my anxiety and other emotions (a side-effect of these drugs) throughout the majority of my adulthood. She gave me an astounded look and said that if anyone had coping skills, it was me. Upon further reflection, I have dealt with more in my 33 years than most people will in their lifetime. Sadly there are people who have lived with worse than I, and I think I have discredited my own struggles and efforts because I didn't feel they were valid compared to what could have been. But I am strong and resilient. I have a lot going against me but I also have a lot going for me.
When the drug Chlorpromazine was relapsed in the 50s, it was marketed as, "The insulin of the nervous."
As I got older and learned more about side effects, possible long-term consequences, and the range of alternative treatments that were available (not EVER, even to this day, has a medical doctor mentioned any alternative health care as an option to me), I started to question the need to be on medication. The funny thing is that when medication is working, one often doesn't think they need it anymore. There are many peaks and valleys on this road. Over the years I tried several different medications and dosage levels, but Paxil was my go-to as it was the most effective. This past month, after the better part of 15 years of being on Paxil, I finally convinced my doctor to change my medication as I did not feel it was working anymore. My dosage was at the highest my body could tolerate and having weaned off of Paxil before, I asked my doctor if I should begin tapering before starting the new medication. My doctor did not think this was necessary because they were both from the same family of drugs (SSRIs Selective Serotonin Re-uptake Inhibitors). I think she was very wrong because the next two and a half weeks were hell. I learned from research that coming off of Paxil is similar to detoxing from heroin. I had daily: headaches, exhaustion, nausea, body aches that required me to have the hottest baths I could stand and wear heating pads and smelly muscle creams which only provided a small amount of relief, dry mouth, jaw clenching, increased teeth grinding at night which made my teeth extra sensitive, decrease in appetite, excessive irritability, pounding heart, increased sweating/always feeling hot yet having cold hands and feet, and nauseating vertigo. These were the withdrawal symptoms - the side-effects of taking SSRIs were also difficult to live with. My doctor has always made the argument that one has to decide whether or not the benefits of taking a drug outweigh their side-effects. I had to ask myself which affected my quality of life more: debilitating anxiety that prevented me from being a functional adult or the side-effects of taking a pill. Most of my life, I've chosen the pill. There are arguments that taking medication actually causes anxiety and depression and that many medical disorders were created by the pharmaceutical industry, however, anyone with anxiety will tell you that it is very real.
We may look back 150 years from now and see antidepressants as a dangerous and sinister experiment.
- Joseph Glenmullen, Prozac Backlash (2001)
I am happy to report that my new medication is working at a much lower dose and with slightly less frustrating side-effects. I have changed my diet, gone back to the gym 5 days a week, am taking more time for myself, am seeing my naturopath and homeopathic doctors and am supplementing with vitamins and other remedies. There is a strong brain-gut link in our bodies meaning that what we eat and what our gut bacteria levels are have a huge effect on what happens in our minds. It's quite a fascinating body of research and it makes so much sense. When I eat clean, organic, gluten-free, dairy-free vegan foods and freshly made juices in combination with proper exercise (cardio, weights, yoga), I feel incredible. My mood improves, my memory functions properly, I sleep better and I have endless amounts of energy. Unfortunately I haven't yet figured out how to continue these practices while working and being a mom. My new project is to find this balance.
Until reading this book, I hadn't come across anything positive about having an anxiety disorder. I talk a lot with parents about the positive attributes their children with ADHD or Autism have, but never had I considered that my disorder may have positive attributes as well. Anxiety causes me to be a perfectionist (which itself isn't healthy) but it makes me a very good employee. My compulsiveness leads to few error and I am obsessively over-prepared. I'm reflective, goal-oriented, organized and very good at planning. I am conscientious and extremely dedicated to my profession. I am attuned and sensitive to the feelings of others and I have high levels of empathy, even toward complete strangers. These skills make me a fairly effective leader. New research now links anxiety to intelligence. I'll take that.
My goal has and always will be to be able to live with my anxiety (and now depression) without the use of medication. I recently voiced my concerns to my therapist about feeling that I won't have the coping strategies to deal with life without medication because I have had the pink pills to reduce my anxiety and other emotions (a side-effect of these drugs) throughout the majority of my adulthood. She gave me an astounded look and said that if anyone had coping skills, it was me. Upon further reflection, I have dealt with more in my 33 years than most people will in their lifetime. Sadly there are people who have lived with worse than I, and I think I have discredited my own struggles and efforts because I didn't feel they were valid compared to what could have been. But I am strong and resilient. I have a lot going against me but I also have a lot going for me.
***
Some staggering statistics from My Age of Anxiety:
- 40 million Americans have an anxiety disorder (1 in 7)
- 31% of money spent on mental health care in the US is for anxiety
- Americans collectively lose 321 million days of work because of anxiety and depression which costs the economy $50 billion annually
Anxiety kills relatively few people, but many more would welcome death as an alternative to the paralysis and suffering resulting from anxiety in its severe forms.
- David H. Barlow, Anxiety and Its Disorders (2004)
I am thankful to not have felt the need to take my own life, however I know people who have succumbed to this deep desperation. I hope that I live long enough to see the day when the #BellLetsTalk campaign is a thing of the past and the stigma is gone. I desperately wish that there will be money for services needed to prevent the alarming number of suicides that occur each day all over the world.
If I could offer anyone trying to help a friend or loved one who lives with anxiety, depression, or any mental illness for that matter, it would be this: be patient, be kind, and listen. Be patient with their symptoms and the side-effects of their medication because most of them are out of their control. Be kind by treating them how you would want to be treated if in their shoes. And listen. Listen with an open mind and heart because having someone to talk to can make all the difference.
If I could offer anyone trying to help a friend or loved one who lives with anxiety, depression, or any mental illness for that matter, it would be this: be patient, be kind, and listen. Be patient with their symptoms and the side-effects of their medication because most of them are out of their control. Be kind by treating them how you would want to be treated if in their shoes. And listen. Listen with an open mind and heart because having someone to talk to can make all the difference.







